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National and International Organizations

American Association of the Deaf-Blind (AADB) - The American Association of the Deaf-Blind is a national consumer organization of, by and for deaf-blind Americans and their supporters. “Deaf-blind” includes all types and degrees of dual vision and hearing loss. Our membership consists of deaf-blind people from diverse backgrounds, as well as family members, professionals, interpreters and other interested supporters.

Administration on Intellectual and Developmental Disabilities (AIDD) - Administration for Community Living, AIDD, helps ensure that individuals with developmental disabilities and their families are able to fully participate in and contribute to all aspects of community life through its funding of the Developmental Disabilities Network, which includes State Councils on Developmental Disabilities, State Protection and Advocacy Systems, National Network of UCEDDs and Projects of National Significance.

Association of People Supporting Employment First (APSE) - The Association of People Supporting Employment First (APSE) is the only national organization with an exclusive focus on integrated employment and career advancement opportunities for individuals with disabilities.

Centers for Medicare and Medicaid Services (CMS) - CMS' vision is to have a high quality health care system that ensures better care, access to coverage, and improved health for all Americans. - A clearinghouse for government reports, laws, regulations, research, and information about Medicare and Medicaid.

National Association for the Dually Diagnosed (NADD) - NADD is an association for persons with developmental disabilities and mental health needs.  NADD is the leading North American expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities.

National Association of State Directors of Developmental Disabilities Services (NASDDDS) - The NASDDDS mission is to assist member state agencies in building person-centered systems of services and supports for people with intellectual and developmental disabilities and their families.

National Association for Protection and Advocacy - The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and the Client Assistance Programs (CAP) for individuals with disabilities. Through training and technical assistance, legal support, and legislative advocacy, NDRN works to create a society in which people with disabilities are afforded equality of opportunity and are able to fully participate by exercising choice and self-determination.

National Core Indicators (NCI) - The National Core Indicators (NCI) is a collaborative effort between National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI).  NCI supports NASDDS member agencies to gather a standard set of performance and outcome measures that can be used to track their own performance over time, to compare results across states, and to establish national benchmarks.

Residential Information Systems Project (RISP) - RISP is a longitudinal study of long-term supports and services (LTSS) for people with intellectual and developmental disabilities (DD).  An annual survey of state DD agencies is used to gather information about the settings in which LTSS recipients live, federal state funding sources, residential setting type and size, recipient age and expenditures. RISP is located at the institute on Community integration at the University of Minnesota.

TASH - TASH is a national organization that advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates.